Garmt's story

Last updated: 13 October 2022

Garmt's story

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In July 2013, Garmt van Soest returned home from a week of kitesurfing, ready to get stuck into some new projects at work and prepare a wedding speech for one of his best friends, Paul.

Devastatingly, upon returning to the Netherlands his neurologist informed him that he had amyotrophic lateral sclerosis (ALS), also known as motor neuron disease. 

With the help of his employer, Accenture, Garmt got in contact with Philips and together they started developing equipment that would enable patients to communicate with their brainwaves.

Garmt's maintained a blog about his life with ALS; one of them can be found on our blogpage

Garmt passed away in October 2017, and is dearly missed by all of his family and friends. 

Medicine: Radicut (edaravone)