Resources

Categories
  1. How we safely transport your medicines: An interview with our logistics team

    Our logistics team is responsible for delivering medicines to patients anywhere they may be. Every medicine is treated with extra care to ensure its safe and timely delivery.

    Read more »
  2. Spotlight on the Patient Support Team: Assisting patients from all over the world

    When our patients submit an inquiry for a medicine, they are then personally contacted by one of our Patient Support team members who assist them through the entire process of ordering, sourcing and delivering their medicines.

    Read more »
  3. everyone.org commitment during the COVID-19 outbreak

    Here are some frequently asked questions and answers that touch on important COVID-19 related updates.

    Read more »
  4. Medicine pricing explained

    After submitting a request and receiving a quote from our Patient Support Team, patients often have many questions regarding the price that they receive. In this article, you can find a breakdown of the total cost of a medicine we are supporting you to access in addition to resources on how you can possibly get it reimbursed.

    Read more »
  5. An easy prescription guideline

    In order to help you expedite the request process with us, we put together a quick prescription guideline.

    Read more »
  6. What is Tudca? | Information & Faq

    5 common questions about the supplement that may be useful for ALS, Parkinson's and Alzheimers.

    Read more »
  7. Promising new data analysis for Alzheimer’s disease treatment

    New analysis of Biogen’s aducanumab shows reduction in clinical decline in Alzheimer’s disease.

    Xray of human brain

    Read more »
  8. How to spot a scam website

    As a pioneer of a completely new type of global service, we understand that trust, security and credibility are paramount–especially when paying for medicines which are essential and often the only treatment option available. There are an increasing number of scam websites and we ourselves have been the subject of one such scam. In this article we’ll give you tips on how to spot these fakers.

    online scam

    Read more »
  9. Matt's story: I'm doing fine

    I’m lucky. It's been 4 years since the first MND symptoms, only my voice has been impacted.

    Read more »
  10. David's story: Nothing to lose

    Two and a half years after his diagnosis, David found a medicine with off-label application for MND.

    david 2x

    Read more »
  11. New Parkinson's therapy approved by the FDA

    Kyowa Hakko Kirin's Parkinson's therapy, Nourianz (istradefylline), gains FDA approval as an add-on to levodopa/carbidopa.

    US flag thumbs up gesture

    Read more »
  12. China approves edaravone for ALS

    Radicut/Radicava (edaravone), shown to slow the progression of ALS, is now approved for patients in China.

    China flag thumbs-uo hand gesture

    Read more »
  13. SMC rejects two cystic fibrosis drugs

    Orkambi and Symkevi have been rejected by the Scotland Medicines Consortium (SMC) due to their conclusion that the costs outweigh the benefits.

    red haired girl on oxygen

    Read more »
  14. EMA recommends approval of Vitrakvi (larotrectinib)

    Vitrakvi (larotrectinib) recommended by the CHMP for approval in the EU.

    EU approval OK hand gesture

    Read more »
  15. Fiona's story: PBC, my mother and me

    fiona 2xAfter 40 years with primary biliary cholangitis, Fiona's mother is still alive thanks to her daughter's dedication and a liver transplant.

    Read more »
  16. Marc's story: A brief look at life with ALS in the US

    After 3 years of living with ALS, Marc found a new medicine on the other side of the world. 

    Read more »
  17. Mark & Dee's story: For better, not worse

    With tears, laughter and hope, Mark and his family find their own way to cope with ALS.

    mark and dee 2x

    Read more »
  18. Peter's story: Life goes on

    Diagnosed with ALS only 6 months ago, Peter went against the current to find more options to treat his disease.

    peter golfing close

    Read more »
  19. MN-166 (ibudilast) to enter phase III clinical trials for progressive MS

    MN-166 (ibudilast) will be part of the Phase III clinical trial on progressive multiple sclerosis subjects with secondary progressive MS without relapses. 

    pipette samples

    Read more »
  20. Libtayo (cemiplimab): The only EU approved treatment for advanced CSCC

    New skin cancer medicine now approved in the EU for adults with metastatic or locally advanced cutaneous squamous cell carcinoma.

    EU approval OK hand gesture

    Read more »
  21. Bakr's story: living with ALS in the UAE

    Still walking and talking after 4 years with ALS: we share Bakr's experience of living with a rare disease in the UAE to further his goal of creating awareness and to connect with other ALS patients.

    bakr and wife daad blue sides

    Read more »
  22. Phase 2 study: Ibudilast's effects in progressive MS

    Phase 2 clinical trial shows that ibudilast is linked to a 48% slowing in the progression of brain atrophy compared to placebo for patients with progressive MS.

    red mri brain scan

    Read more »
  23. Vyndaqel (tafamidis): Amyloidosis treatment approved by the FDA

    Vyndaqel (tafamidis) is now approved in the U.S. after study showed increased survivorship rate and reduced hospital time due to heart related problems.

    US flag thumbs up gesture

    Read more »
  24. FDA gives go-ahead for MN166 (ibudilast) to begin phase 2b/3 clinical trials

    Approval for next phase of clinical trials puts ALS patients one step closer to accessing new treatment shown to slow disease progression.

    FDA Ibudilast molecule and pills

    Read more »
  25. Fact Sheet for Healthcare Professionals

    Downloadable fact sheet answering the most common question TheSocialMedwork asked by healthcare providers.

    doctor ok sign

    Read more »
  26. Kalydeco (ivacaftor) now approved in Canada for children aged 1-2

    Based on promising results from phase III clinical trials, Health Canada has decided to extend the use of Kalydeco (ivacaftor) to include children aged 1 to 2 years. 

    toddler in park with bubles

    Read more »
  27. I love someone who is rare

    In recognition of Rare Disease Day, our colleague, Sera, shares her story of her dad's fight with Multiple System Atrophy (MSA). 

    rare patient with heart

    Read more »
  28. Prescriber: everyone.org, providing access to overseas medicines

    Prescriber

    Read more »
  29. Children with cystic fibrosis have a chance to breathe easier

    A recent clinical trial indicates that Symkevi/Symdeko (tezacaftor/ivacaftor) can safely and effectively loosen thick, sticky mucus for children 6-11 years old.

    girl running through field

    Read more »
  30. New cancer medicine targets tumour biomarkers anywhere in the body

    The new site-agnostic cancer medicine, Vitrakvi (larotrectinib), gets accelerated approval from the U.S. Food and Drug Administration (FDA).

    US flag thumbs up gesture

    Read more »
US 0