Resources

Categories
  1. Teresa's story: how ALS changed my life

    Teresa's husband was diagnosed with ALS. She spent 11 years as his caregiver and discusses her experiences.

    teresa: caregiver story

    Read more »
  2. Onpattro (patisiran): the first RNAi therapeutic approved in the European Union

    Onpattro (patisiran) is a first-in-class treatment that slows down the progression of hereditary transthyretin amyloidosis (hATTR).

    EU approval OK hand gesture

    Read more »
  3. Cancer medicine, Lartruvo (olaratumab), does not prolong life

    After failing to show a clear benefit over chemotherapy on its own, both the FDA and EMA do not recommend Lartruvo (olaratumab) for use in combination with chemotherapy for new STS patients.

    old bench

    Read more »
  4. 5 simple tips for a good start to 2019

    Realistic new year's resolutions for lasting results!

    holding calendar clipboard

    Read more »
  5. Reimbursement information on Spinraza (nusinersen)

    Over 50 countries have approved Spinraza (nusinersen), but not all have made it available to the patients who need it.

    stethoscope on money and med chart

    Read more »
  6. Erleada (apalutamide) gets positive opinion from the EMA

    New medicine shows statistically significant improvements for prostate cancer patients.

    backlit man on mountain arms out

    Read more »
  7. Backend/Full-Stack Developer (Magento)

    We are looking for an outstanding Web Developer to be responsible for the coding, innovative design and layout of our website. 

    web developers sitting at a desk

    Read more »
  8. Truxima (rituximab) gains FDA approval as the first biosimilar for Non-Hodgkin's Lymphoma

    A new biosimilar, Truxima (rituximab), shows comparable results to the reference medicine, Rituxan (rituximab), and takes FDA one step further toward expanding patient access to medicines.

    approved stamp with stars

    Read more »
  9. What is everyone.org? An insider view

    Our team shares their take on what we do at TheSocialMedwork.

    what is tsm

    Read more »
  10. Vyndaqel (tafamidis) prolongs life of FAP patients

    Positive news for patients with early-stage FAP; results from a Portuguese study show that a liver transplant or Vyndaqel may extend survivability.

    grandfather pointing into sea

    Read more »
  11. A new gene therapy on the horizon for SMA

    Zolgensma (onasemnogene abeparvovec-xxxx) to receive priority review by FDA as a one-time treatment of type 1 spinal muscular atrophy (SMA).

    baby outside reaching toward viewer

    Read more »
  12. Orkambi approved in Australia, will others follow?

    Australia provides reimbursement for cystic fibrosis medicine.

    family blowing bubbles

    Read more »
  13. Alunbrig (brigatinib) approved in Europe for another type of lung cancer

    The European Commission has approved Alunbrig (brigatinib) for the treatment of a specific type of lung cancer.

    eu stars

    Read more »
  14. Bavencio (avelumab) misses ovarian cancer trial endpoints

    A late-stage study testing Bavencio (avelumab) has failed to meet its primary endpoints in patients with certain forms of ovarian cancer.

    woman backlit sun field

    Read more »
  15. Ocrevus (ocrelizumab) helps preserve hand and arm function in PPMS

    In an exploratory study Ocrevus (ocrelizumab) slowed down loss of function in the upper extremities for patients with primary progressive multiple sclerosis (PPMS).

    woman raised hands near water

    Read more »
  16. Supporting the Named Patient: Healthcare professionals

    Doctors hold the key to access new medicines.

    doctor and patient

    Read more »
  17. Supporting the Named Patient: How we do it

    How we find and ship medicines on behalf of patients.

    Read more »
  18. PRESS RELEASE: الفحص المبكر وإمكانية التخلص من سرطان الثدي

    Gulf Press Release

    Read more »
  19. PRESS RELEASE: Neelie Kroes en Willemijn Verloop versterken everyone.org

    Netherlands

    Read more »
  20. PRESS RELEASE: everyone.org wins new hearts, minds and funding

    United States

    Read more »
  21. Newly approved in the EU: Durvalumab (Imfinzi) an immunotherapy for Stage III Lung Cancer

    Read more »
  22. Where data and humanity meet: an algorithm to improve medicine pricing models

    Industry NewsHow two professors imagine a better world for stakeholders in the medical industry. 

    Read more »
  23. Mystery around a high-risk leukaemia solved

    "These results offer a leap in understanding about this disease that provides a genetically based framework for designing clinical trials to develop more effective treatments of MPAL," 

    High-Risk Leukaemia

    Read more »
  24. New method promises fewer side effects from cancer drugs

    "In short, it will help produce drugs where we can be far more confident about where modifications are being made, so that side effects can be minimized in the future"

    Fewer Side Effects

    Read more »
  25. What happens between availability and approval of medicines?

    TimeUnderstand why approval doesn’t necessarily mean availability and what you can do if a medicine is approved, but not available in your country.

    Read more »
  26. Chinese ‘Buyers Club’ shines a light on access delays

    Picture With Lights

    Dying to Survive’ was an unlikely blockbuster, documenting the plight of a leukemia patient who puts himself at risk to import costly cancer drugs for himself and his fellow countrymen.

    Read more »
  27. Breast Cancer: New indicators found to help in prognosis for the most aggressive form

    Researchers report a successful classification of triple breast cancer patients, which for the first time, would allow doctors to discern between those who can be cured and those who might suffer a relapse. 

    Triple Negative Breast Cancer

    Read more »
  28. CAR T cell approval may offer patients a new form of therapy

    Industry NewsAccording to study investigators, about a third of patients could benefit from this therapy that may offer remissions, relieve symptoms and save lives.

    Read more »
  29. Stem cells as a new drug delivery tool for childhood brain cancer?

    "This is a great avenue of exploration, particularly for the 30 percent of children who struggle or don't make it with standard therapy."

    Stem Cell drug delivery in Brain Cancer

    Read more »
  30. Deep brain stimulation leads to increased understanding of Parkinson's disease

    These findings increase our understanding of how the brain is affected by Parkinson's disease...

    Parkinsons' Deep Brain Stimulation

    Read more »
US 0